What future is there for UK's Care.data info sharing scheme?

Hated by privacy campaigners, in a pilot stage, and now a year late


The future of the controversial Care.data scheme will be dependent on the outcome of a much-scaled back pilot programme which started this autumn, meaning that at best it will arrive one year late, a report revealed Friday.

Care.data is a mega IT programme intended to connect information on GP records with the Health and Social Care Information Centre. It was originally planned to be rolled out in Spring 2014.

However, the scheme was put on ice for six months following a public outcry that the NHS had failed to properly consult on the privacy concerns of sharing data.

A report from the All Party Parliamentary Group (APPG) for Patient and Public Involvement has revealed that further delays are likely to occur, as NHS England awaits the outcome of its pilot programme.

The report said NHS England confirmed a "pathfinder stage" for the Care.data programme, of between 100 and 500 GP practices in the autumn of 2014. What happens next will depend on the outcome of the pilot.

No dates have yet been released as to when NHS England will make a decision to go ahead (or not) with the scheme, but it is expected to occur in the in spring of next year, said a APPG spokesman.

"The APPG will discuss the progress of the Care.data programme at a meeting in 2015. If necessary, NHS England’s Care.data team will be asked to report on how the programme has progressed. The APPG can then decide whether to take any further action," said the report.

In October, the APPG opened an inquiry into the lack of publicity, clarity and patient involvement in the programme, and concerns around data being shared with private sector organisations.

Katherine Murphy, chief executive of the Patients Association, said: "Patients and the public are broadly supportive of the principle of using health data for research that is in the public interest."

"However, many people still have deep concerns about the programme and are worried about how their personal data will be used," she added. ®

Similar topics


Other stories you might like

  • Is computer vision the cure for school shootings? Likely not
    Gun-detecting AI outfits want to help, may introduce fresh problems

    Comment More than 250 mass shootings have occurred in the US so far this year, and AI advocates think they have the solution. Not gun control, but better tech, unsurprisingly.

    Machine-learning biz Kogniz announced on Tuesday it was adding a ready-to-deploy gun detection model to its computer-vision platform. The system, we're told, can detect guns seen by security cameras and send notifications to those at risk, notifying police, locking down buildings, and performing other security tasks. 

    In addition to spotting firearms, Kogniz uses its other computer-vision modules to notice unusual behavior, such as children sprinting down hallways or someone climbing in through a window, which could indicate an active shooter. If you're wondering about the code's error rate, Kogniz says it has "a trained team of human verifiers" checking the results of its detection software. Either you welcome that extra level of confirmation, or see it as AI potentially falling back on humans right when the computers are needed most.

    Continue reading
  • Arm says its Cortex-X3 CPU smokes this Intel laptop silicon
    Chip design house reveals brains of what might be your next ultralight notebook

    Arm has at least one of Intel's more capable mainstream laptop processors in mind with its Cortex-X3 CPU design.

    The British outfit said the X3, revealed Tuesday alongside other CPU and GPU blueprints, is expected to provide an estimated 34 percent higher peak performance than a performance core in Intel's upper mid-range Core i7-1260P processor from this year.

    Arm came to that conclusion, mind you, after running the SPECRate2017_int_base single-threaded benchmark in a simulation of its CPU core design clocked at an equivalent to 3.6GHz with 1MB of L2 and 16MB of L3 cache.

    Continue reading
  • Ditching VMware over the Broadcom buy? Here are your options
    What's your contingency plan?

    OPINION Broadcom has yet to close the deal on taking over VMware, but the industry is already awash with speculation and analysis as to how the event could impact the cloud giant's product availability and pricing.

    If Broadcom's track record and stated strategy tell us anything, we could soon see VMware refocus its efforts on its top 600 customers and raise prices, and leave thousands more searching for an alternative.

    The jury is still out as to whether Broadcom will repeat the past or take a different approach. But, when it comes to VMware's ESXi hypervisor, customer concern is valid. There aren't many vendor options that can take on VMware in this arena, Forrester analyst Naveen Chhabra, tells The Register.

    Continue reading

Biting the hand that feeds IT © 1998–2022